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A Place to Know More About Ability
In Washington DC, I visited The American Association of People with Disabilities (AAPD) and interviewed Zach Baldwin, Director of Outreach. AAPD has implemented various projects to promote equal opportunity, economic power, independent living, and political participation for people with disabilities. This time I mainly asked about employment-related projects, which is my research focus.
I have been in New York City (NYC) since last week. The main purpose of visiting NYC is to attend the 9th session of the Conference of State Parties to Convention on the Rights of Persons with Disabilities (CRPD) at United Nations Headquarters in New York. The convention is international level rules that protect rights of people with disabilities. The text was adopted by the United Nations General Assembly in 2006, and Japan signed in 2007 to agree with the convention and confirmed officially in 2014 after improved domestic policies for people with disabilities. This year in April, the Act for Eliminate Discrimination Against Persons with Disabilities came into force in Japan. This is one of the improvements that Japanese government has implemented to comply with CRPD. Through 3 days conference, I have gained lots of information and things to think…and new networks!
Rooted in Rights, an advocate group of human right for people with disability, invited me to feature in their filming projects in February when I was in Washington interviewing Disability Rights Washington. I grabbed the chance and said yes right away! I am very lucky to have this opportunity to talk about the employment-related challenges people with disabilities faced in Japan. Through working with Rooted in Rights, I shared the issues in Japan that I have noticed and my vision to change that.
The film was just released yesterday. You can watch it here!
The last person I visited was John Kelly who is a well known disability advocate in Boston. 32 years ago, he had an accident and became a quadriplegic. He was 25 years old at that time. It was a huge adjustment for him since he lived as an bodied person for a long time.
After I heard his very active history, I asked a question which I have been wondering for a long time. ” Why does US have so many disability advocates?” John shared his theory with me and explained the history and culture that have affected to the US today.
Being a person with disabilities may be a disadvantage in workplace. Being a women also may be too. Professor Lisa Iezzoni, whom I visited in Boston, works for the Massachusetts General Hospital, a major teaching affiliate of Harvard Medical School. She has multiple sclerosis and uses a wheelchair for all mobility needs. She shared her experiences of difficulties to build her career because of her gender and disability, and explained how change of law and education gave an impact to workplace in US.
In late March, I attended 31st Annual International Technology and Persons with Disabilities Conference in San Diego. At the conference, you can find the latest technology service and products which support and maximize abilities of people with disabilities in daily life, at school, or workplace.
At first, I was only planning to go there as an attendee. However, Sheryl Burgstahler who is a director of DO-IT Program in University of Washington (Interview report is here) asked me to give a presentation with her. DO-IT Program has been implementing locally in Asian countries including Japan. At Sheryl’s session, I got 15 minutes to talk about education and employment environment for people with disabilities in Japan.
In the next day of DO-IT interview, I was invited to a pizza networking gathering which is held 3 times a year to get all Scholars and parents together. The rooms for students and parents are separated. In that way, students can talk with students about their updates, and parents can exchange information.
It is very good idea to make an opportunity for parents to stay connected. Parents have so many worries because they don’t have enough information or experiences, and eventually they overprotect their kids. By providing a place where parents get together, they can share their worries and difficulties, and other parents can give advice and think ways to resolve the issues together. This is a huge power.
In February, I visited DO-IT in University of Washington. Dr. Sheryl Burgstahler, a founder and director of DO-IT, got interested in “assistive technology” which supports people with disabilities throughout her first career as a junior high mathematics teacher. In 1984, when Macintosh came to the world, Sheryl felt that IT would change the society dramatically. Then she started thinking how to reduce the gap between people with and without disabilities by utilizing her knowledge, experience as a teacher, and IT.
To students with disabilities, there is a big difference in learning environment between college and high school which is mandatory education in the US. Sheryl had found this issue, and decided to start DO-IT which supports students with disabilities to transit smoothly from high school to post-secondary education.
To me, it is very normal to disclose my disability on my résumé because it is very common in Japan. However, I was shocked when I heard Sarah’s perspective about what résumé should be focused. In Japanese society, disclosing disability in job interview and carrying the ID for persons with disabilities are required. I am sure some Japanese people get benefits because of the system. But because of the system, I wonder if many people have incorrect assumption toward people with disabilities’ work performance and value of résumé. How do you think?
In Boston, I visited Boston Center for Independent Living and interviewed Allegra Stout and Sarah Kaplan. Through the interview, I became interested in Transition Internship Program which provides paid internship opportunities for high school students with disabilities. The internship sites vary, and include profit and non-profit organizations, local companies, educational institutions, and governmental agencies. The important point is that Transition Internship Program gives an opportunity based on what trainees want to do, not what they can do. What would be the reason for that?